When Emmy was born with a huge grin and pinky fingers that were turned inwards, her mother Vanessa knew something was not right.

Vanessa told her daughter Emmy looked different when she was born and had a huge grin and pinky fingers that were turned inwards.

When she told about it to the medical staff, they told her she was ‘looking for things’.

Vanessa decided to research on her own and found out that having pinky fingers that are turned inwards can be a sign of several syndromes.

The medical staff told her she was being ‘ridiculous’ and was ‘looking for things’.

Vanessa then met a cardiologist after Emmy had a heart murmur and was told she may have a syndrome.

Emmy was then diagnosed with Williams syndrome which causes learning problems, distinctive facial features, and heart problems.

Emmy suffered cardiac arrest twice after heart surgery and was put on life support for a week.

However, she is now doing well and is a happy child. Vanessa describes Emmy as a funny, smart, sweet, and caring child.

Her mother Vanessa said: “The special days I have with Emmy aren’t the ‘big’ days like trips to Disney World, it’s snuggling on the couch on a rainy day.”

Vanessa says Emmy is hilarious and loves to talk. She also loves sports and is like any other normal child.

When Vanessa took Emmy to a kids’ music class, she jumped with joy and said: “Thank you so much for bringing me here! This is the best day of my life!”

Emmy struggles with fine and gross motor skills as she finds it difficult to grip a pencil, hold her food tray in the school cafeteria and hold herself upright on the bench.

Despite this, Emmy is full of life and has a positive attitude towards life.

Vanessa wants Emmy to achieve everything in her life. She said: “I’d love Emmy to be able to drive a car, go to college, and get married (if she wants to).”

She wants her to choose a profession that she’s proud of and wishes for her to have unending happiness.

 

 

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