7-month-old JT Borofka was diagnosed with Triosephosphate Isomerase Deficiency.

This disease is so rare that he is probably the only person alive with the condition.

Doctors said he only has two to five years to live but his loving parents continue to fight for him and haven’t lost hope.

Triosephosphate Isomerase Deficiency is a rare genetic disorder that causes health complications such as heart and respiratory failures. According to the US National Library of Medicine, the disease is so rare that only 40 cases have been reported. Baby JT may be the only person alive who has the condition.

Tara and Jason Borofk want to make sure their child survives longer than the two to five years specialists have given him.

Despite his struggles in life, JT manages to smile a lot. He is currently being treated at Stanford Children’s Hospital and doctors are doing their best to prolong his lifespan.

Jason told KBW: “We believe, and the doctors believe, that he’s the first person to be detected with this very rare disease before the neurological and major symptoms start. Our doctors at Stanford and their team are scrambling to come up with a cure or some type of treatment for our son.”

He added: “The doctors gave him two to five years to live, and he said it going to be very tough on us and that it was going to be horrible. We cried for a solid week for sure, but now we’re holding on tight, and we’re going to try and beat this.”

Aside from Triosephosphate Isomerase Deficiency, baby JT also has Hemolytic Anema, a disease that causes red blood cells to die faster than normal. Frequent blood transfusions are required but the process leaves him with neurological damages.

The family’s GoFundMe have collected more than $40,000 of their $150K goal. The page wrote: “He has this contagious smile that will melt your heart, and his favorite foods are bananas and sweet potatoes. We think he’s got a tough personality too because he hardly fussed when his two bottom teeth came in last month. He’s also mastered rolling over, throwing things on the floor and is learning how to sit up now.”

We are praying for you, little one! Wishing you all the best.

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