The parents of a four-year-old girl, who is slowly dying of childhood dementia, have shared their daughter’s story which is heartbreaking.

Violet Jones, from Crosby, Merseyside, is suffering from Batten disease which causes dementia symptoms.

Her parents are told that Violet won’t live past the age of 12.

When her parents, Michelle and Peter Jones, noticed that their daughter is unable to talk and walk properly.

They took her to a doctor. In January, the four-year-old was diagnosed with the rare disease.

The parents were then told that Violet won’t live past the age of 12 and will eventually lose the ability to speak, swallow, see, hear, and breathe.

Due to her disease, she will become wheelchair-bound. However, she still recognizes her family.

The parents are now hoping that a new treatment on the NHS, which can slow the disease’s progression, will help in extending the life of Violet.

Mrs. Jones said about the rare disease: “It’s not even a quick death, it’s slow. It’s the worst form of torture, dying slowly. It’s so hard to even contemplate it. Our world just came crashing down.”

“It doesn’t feel real. This is the kind of thing that happens to other people. It’s heartbreaking.”

Violet was born on July 25, 2015, weighing 7lb 9oz but she started having seizures when she was three.

One day, when she was with her father, asleep in his van, she vomited and started having a seizure.

That was the first time Violet had a seizure. They took her to the hospital and her parents were told she was fine, but she had another seizure a week later.

When the family was on a holiday to Turkey, her parents noticed Violet was unable to walk properly.

Mrs. Jones said: “She looked like she was losing her balance, but we thought she was just being a typical toddler and being a bit silly.”

“But when we came back home, we noticed her speech started to change. She could not get her words out and she slurred.”

She was then diagnosed with Batten disease which causes symptoms of dementia.

Her mother says Violet has stopped running around and playing with other kids now. She is not the same after the diagnosis.

Speaking about the NHS treatment, her mother said: “There’s no cure for Batten, but this is a breakthrough treatment that will slow the onset and extend life expectancy.”

Violet’s auntie Ashleigh Curran has created a GoFundMe page to help the family which has so far raised more than £15,000.

 

 

[rumble video_id=vay38 domain_id=u7nb2]