A devastated mother has opened up about her son’s incurable condition which causes the boy’s skin to crack and fall off.
7-year-old Kai Clay is a brave boy from Alfreton, England, who suffers from Pityriasis Rubra Pilaris, a rare skin condition that affects one in 400,000 people.
As the boy’s mother revealed, Kai’s skin is constantly cracking and falling off “like a snake,” resulting in dangerous inflammation and risks of blood infection.
Despite the severity of his condition, which sometimes sees the boy struggle to perform the most basic of tasks, brave Kai never stops smiling and enjoying his life.
“I just find it mind-blowing how a seven-year-old kid can be so strong and brave about it and just smile through it all. It makes me feel so proud of him,” Kai’s mom, 27-year-old Nikita, said.
“Kai is shedding skin daily – his whole body is very flaky so when he wakes up in the morning there’s dead skin all over his bed. His skin is red raw and gets pustules, which can get infected. It’s so itchy and uncomfortable constantly for him.”
She added: “He has really thick scaly skin on his scalp, hands and bottom of his feet, so sometimes that will crack and bleed and make it very uncomfortable just to do daily activities and he loses quite a lot of hair as well.
“His eyelids also turn inside out and go really red, dry and sore to the point that it’s really hard to open and close his eyes. It just breaks my heart every single time, especially because there’s nothing I can do about it.”
Amazed by her son’s incredible resilience, Nikita admitted she couldn’t cope with all the pain her son is going through.
Though the young boy was diagnosed with the condition when he was just six months old, things took a turn for the worse when he turned four and his scaly skin began covering the majority of his body.
“When I sat down and spoke to the doctor he explained how rare the disease is and that there isn’t a cure, so there isn’t going to be a long term fix,” Nikita recalled.
“So then I was heartbroken for Kai knowing he’s got to deal with this for the rest of his life. It was awful when I actually realized how serious it was.”
As severe as Kai’s condition may be, the brave boy’s mother is determined to continue raising awareness about Pityriasis Rubra Pilaris and not give up on finding a cure for her son.
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