It’s annoying if you are unable to tame your hair whether it’s frizzy or straight.
People spend a lot of time taming their hair if they have curly or frizzy hair. Straight hair too has their own problems. But if you have wild twisted hair then it is impossible to get unnoticed by people wherever you go.
Sara Lamb, a trainee nurse, faced the same problem not because she was unable to tame her hair, it was her daughter, Jaili, who had wild hair. It was impossible for Sara to tame the crazy mop of hair of her daughter. Though she was not born with it, in fact, she had pretty normal baby hair but after some time, it fell out and wiry, coarse hair started to grow in which made Sara’s life difficult.
Doesn’t she remind you of Albert Einstein? It is because she has uncombable hair syndrome. Sara learned that her daughter, Jaili’s hair is a genetic mutation called Pili trianguli et canaliculi. It is assumed that Albert Einstein had it as well.
Sara who is a trainee nurse read about uncombable hair syndrome and immediately thought that it might be the reason for wild hair of her daughter. She sent DNA samples to the Institute for Human Genetics at the University of Bonn which revealed that Jaili has uncombable hair syndrome which causes her hair to have a twist, making it wilder and crazier.
Sara says that it is impossible to style her hair no matter how much she tries, she has already spent hundreds of dollars on so many different hair products. Going outside is impossible as people notice the crazy hair Jaili has and even touch without asking.
Dr. Alanna Bree, a pediatric dermatologist with the National Foundation for Ectodermal Dysplasias, said, “There is no cure for this, but the prognosis of this is really good.”
Sara is hoping it to get improved with age as it would be difficult for her child once she starts High School. “She has a quirky personality and her hair is an extension of that.”, said Sara Lamb.
Though Jaili is not alone. There are two others who have same untamable hair. All three girls were featured in an Inside Edition video. Take a look at the video and let any others know who needs to be aware of this hair syndrome!