Tom Evans and Kate James, the parents of Alfie Evans, appeared on This Morning to show off their son Thomas for the first time since he was born early last month.
Their new baby boy, Thomas was born four months after their brain-damaged son, Alfie died from a rare genetic disorder.
The couple also revealed that Doctors have finally told them of the condition which killed Alfie – a degenerative brain disease called GABA-transaminase deficiency.
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The parents also revealed that they were told that they had a one in four chance of passing on the disorder – of which there have only been 10 cases worldwide – to future children.
The parents waited for four days to see if their new son had the same condition. But, the tests came back negative.
Speaking to This Morning co-hosts Phillip Schofield and Holly Willoughby, Kate said:
‘At first, it wasn’t so joyful, we were scared. When he came along it was mixed emotions. It was bittersweet.’
‘It sounds bad now, but I was scared I would resent the baby. But he’s amazing, he looks just like Alfie.’
‘We found out after Alfie passed about the condition being passed on through us. And then we were told we have a one in four chance of it happening in more babies.’
‘Around June the midwife phone me and said I had to come in. We went in and they explained they found two faulty genes, one from Tom and one in me.’
‘I knew there was a chance Tom could have the same condition but it wasn’t until I was induced that I began to really worry about it and became convinced he had it.’
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Video Credit: This Morning
‘He frowns and stretches like Alfie, he is just a double. When I had him, I wondered “what if he does resemble Alfie”, how will I feel.’
‘It’s nice to be able to say his name and feel positive.’
Tom couldn’t control his tears and add:
‘Sometimes you feel Alfie is in him. You’ll say “Alfie” and Tom will smile. We will always have two children, no matter what.’
‘We’re happy for what we had, and what we have still got because we have two amazing children and we will always have them.’
After Alfie’s parents fought to take him to Rome for emergency treatment, the case gained media attention.
But unfortunately, the 23-month-old baby died in April after a court ruled for his life support to be switched off.
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